Huffington Frenzy and other stories.

 

Mik Scarlet sitting at his desk

Chained to my desk

I have been a busy boy recently.

As August drew to a close, I found myself reflecting on what it means to be getting old. I had just celebrated my 49th birthday, and as my parents were told I wouldn’t make it past the age of 5 the fact that I am nearly 50 really hit home. So I wrote it all down in a piece called Aren’t You Lucky? or Another Birthday, Another Miracle.

Something that I really enjoyed was reviewing some of the shows put on as part of the Unlimited Festival at London’s Southbank at the start of September. In case you missed them here they are;

The Dinner Party Revisited – Katherine Araniello’s fun filled anarchic video performance show.

Guide Gods – Claire Cunningham’s exploration of religion and disability using dance, music and spoken word.

Let Me Stay – Julie McNamara’s one woman show about her Mother and the impact that Dementia has had on her the wider family.

I’ve also written a round up review for PosAbility magazine, that will be in the next issue.

My monthly column in Disability Now covered a recent trip to sunny Margate, and I had another arts review published on the Huffington about the wonderful Penny Pepper’s show Lost In Spaces.

Just as I thought it was time to focus on a series I am currently writing on the topic of bionics (perfect for someone who dreamed of being the Six Million Dollar Man as a child) I found that I had to put finger to key board in reply to an article in The Guardian called “Don’ts aren’t working: Here’s five things you can say to someone with a disability” as I so disagreed with it. As I run training sessions which revolve around techniques for both discussing disability and how to talk to disabled people I thought the piece was troublesome to say the least and so I gave my views on the issue in Cute… But Wrong!

On top of that I carried out some training for Network Rail up in York, and shall be back in October.

Phew, it’s been a busy few weeks. But there can be no rest for the freelancer, and so I shall leave you and get back to work!

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Holiday Travel Blues

I am writing this during a break in packing for the first holiday my wife and I have booked in over three years, as I need to take my mind of the increasing panic I am feeling. Writing it down makes it more real and not seem so crazy. You see one of the driving reasons why it has been so long since we last traveled to foreign climes is my dislike of traveling abroad. But this is not a phobia, not but is instead based in the litany of cock ups, disasters, mistakes and down right discrimination I have faced during the 25 years I have been trying to see the world. In fact one of the things that always amazes me when I read any foreign travel story written by a disabled traveler is that they hardly ever experience any major problems. Every time I have gone abroad something has happen worthy of an entire book, or a comic farce at the least.

It began with my first trip away to Ibiza in 1988, at the tender age of 23, with my great mate Trevor Beasley. I should have known the omens were bad when I was dropped by the ground staff who carried me onto the plane. Not only dropped, but dropped onto my spine – the root of my impairment. So to say it hurt was a considerable understatement! That was soon forgotten as we did the decent thing for two young guys on a lads holiday and got very drunk on the flight. We arrived at the hotel only to find that the room that we had been promised would be OK for my wheelchair had a minor issue… I couldn’t get through the bathroom door. The solution? We removed the door. So this meant that Trev and me got better acquainted the we would have preferred, but the holiday could proceed. After three days of sun, sea and failing to find sex, on the way back to the hotel after another boozy night, there was a terrible crunching sound and my chair broke in half. IN HALF! We fought our way back to and I then spent four days stuck in our room, having food brought up to me by the mate of which ever girl Trev was trying to chat up. Finally Trev found a garage run by a guy from Scotland, which allowed Trev to describe what was wrong with the chair in English, and he bravely carried the broken scrap metal to a nearby town in the boiling mid day sun to be repaired. (yes he never tires of telling me how tough it was, even to this day) It returned welded solid, and so was possibly the first rigid frame chair ever. All of this had taken the shine off the break, so we decided to stick to attending a nearby punk bar for the rest of the holiday in case of any more “incidents”. When it came time to leave, I sat on the place filled with feeling of happiness. I was going home and so nothing else could happen. Until I saw the baggage handlers jumping on my welded open chair in a futile attempt to close it. On arrival home I found both wheels were buckled and had to spend ages stuck on house arrest waiting for a replacement chair to come.

Mik Scarlet & Trevor Beesley Ibiza

80’s Sunshine Boys

What is most amazing is that this is not a one off. Everything that happened on that holiday has been repeated in some form or other on almost every other time I traveled abroad. Not only for a holiday, but for work too. I once went to New York to film a travel program for the BBC. Not only was I a wheelchair user, but so was the director. When we landed at JFK all hell broke loose. The ground staff refused to help either of us off the plane. While I eventually decided to crawl the length of the plane and down the steps to the ground, my director could not as she used a powerchair and just could not crawl. So now we have a plane that needs to be turned around with a cripple stuck on it. After an age, getting near to an hour, the panic became fever pitch and the poor director was manhandled off the plane by cabin staff, mixed film crew and anyone else nearby. Even after we got off, this major world city was not all wheelchair heaven. The freakiest thing was the wheelchair accessible cab we hired to drive us around for the period we were filming there. The driver smoked super strength weed all day and night, freaked out at regular occasions and drove off without us twice. And of course my chair broke and I pulled a muscle when I got thrown out of my chair by a massive pothole in a road I was crossing (note New York has great pavements but the roads are appalling!). I won’t bore you with my long list of other reasons why it was a disaster because I disliked the city so much I fear it might have coloured my view.

Mik Scarlet on the Hudson river NYC

Mik Does The Big Apple

But my most recent trip away really put my off flying, almost for good. After a fairly successful trip to Cyprus, with only a minor wheelchair repair incident, my wife and I arrived at the airport with a feeling that maybe our travel jinx had been broken. As well as ourselves there was a other nice couple waiting to be loaded onto the flight, with the wife being the wheelchair user in this love match. We queued to get on the plane, but instead of being let on first as usual, we were made to wait until the very end. I got onto the plane only to see that the seats at the very front, usually reserved for disabled people, were filled with people who had paid for early boarding. When I asked if anyone would move, they all firmly said no. Luckily someone on row three said they would, and I fought my way to this seat. I should say that I now no longer allow anyone to carry or assist me when getting on or off planes, after way too many disasters, so I manhandled myself to this seat. The other wheelchair user was not so lucky. She needed a much greater level of assistance, and it was obvious to anyone who cared to look that she really needed to be sat at the front of the plane. But still none of the people who had paid six whole pounds for early boarding would move, especially the only person in the six seats who was traveling alone. He was quite insistent that he had paid for the seat so he was staying in the seat. Instead this poor woman had to be carried down the aisle of the plane way back to seats sixteen or seventeen rows back. By the time she arrived at her seat, her blouse was over her head, her skirt was round her ankles and she was screaming in discomfort. On arrival home we were met by the UK ground crew who were stunned to find the seats we had been put it, if for no other reason that it made their jobs harder. We swopped numbers with the couple as we wanted them to claim against the airline but heard no more.

As I said earlier if I tried to list everything that has ever happen when traveling abroad this would be one of the longest articles in history, there have been so many. A humdinger was when we arrived at a hotel and got our keys to our room on the forth floor, but when we asked “where’s the lift” were met with the answer “What lift?”, or the time we tried a package holiday from a supposedly accessible holiday company only to arrive at the hotel to be told they don’t have any accessible rooms. We ended up being moved to another hotel to a room that meant I couldn’t wash for week as there was no accessible bath or shower. The list is endless.

But don’t let this put you off traveling if you are disabled. What you need to do is plan. Plan for every eventuality. This time away I am taking a full puncture repair kit, plus we know the Spanish for bike pump, a mini tool kit, every type of pills and potion I might ever need and a full knowledge of both local and international equality and airline law. To me foreign travel is not super fun, but more a test of endurance. But us disabled people do like to prove we can do something, and the harder it appears to be the more some of us like to it. All I will say is next time you read one of those “Here’s a list of amazing fun things I did when I visited…” articles they may have left out some the less fun events out of the story as not to terrify you. I mean who wants to read a travel article that just goes “ARGH, it was awful!”?

Anyway, back to the packing. Do they allow welding gear on flights nowadays?

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Travelogue 1 – Derby

At the start of 2012 I promised myself that I would try to see more of the great country I live in. It seems that February really kicked started this goal, with a series of trips all over the UK in my diary.

The first was a visit to Derby to write an article for Disability Now magazine on the photographer Rei Bennett’s Beauty from Damage project, which will be in the next issue of DN. I have been to Derby a few times in the past but as a singer with various bands, as it is a great place for live music. The only problem with seeing anywhere when you’re touring is that you don’t get to see it. You arrive, sound check, have something to eat, do the show and retire to a hotel for drinks and passing out. The next morning you’re back on the road with a place name ticked off your tour itinerary, but with no actual knowledge of what that place is like. So I wanted to experience what Derby had to offer, and with this in mind I booked a hotel room for my wife and I the night before the interview.

We stayed at the Cathedral Quarter Hotel in St. Mary’s Gate, which was a great choice. It’s a really nice high quality hotel, that came at a very reasonable price. From the minute we arrived outside it was obvious that the Cathedral Quarter was going to be accessible too. While it is an old building, the Old County Offices, it’s wheelchair accessible through out. Our room was nice too. Not massive, but superb for the price paid and very swish. The bathroom was very accessible too, with a walk in shower and handrails galore. The whole hotel was a superb combination of designer chic and historic features, including stained glass windows on the sweeping stair case in the lobby. The staff were really helpful and very friendly.

In fact everyone we met in the city were friendly and chatty. So much so that it made the whole visit even more enjoyable. It’s funny how your experience of a place can be so heavily influenced by it’s people, but it only becomes clear when you visit somewhere where everyone is so nice. But not only has Derby got great people, it’s also a really great place.

At this point I must mention the thing about Derby that really impressed both me and my wife… just how accessible for disabled people it is. In fact it is so accessible that I would say that Derby should be a shinning example to other towns and cities. In the past I have always given the example of Barcelona as proof that a anywhere can be made accessible, but Derby equally proves it and is here in the UK. Derby really is that good. It starts with the pavements, with large areas being pedestrianised. I know that many people find the idea of shared spaces frightening, but Derby demonstrates that these fears are unfounded. The changes from pavement to road area are marked with noticeably different coloured paving, and have a small dip to make sure people with visual impairments are safe, while ensuring a smooth surface for us wheelie types. Pretty much all the shops had ramped access, and everywhere had lifts and toilets. They had even made most of the cobbled areas accessible by smoothing off the surfaces of each cobblestone. Anyone who uses a wheelchair knows how truly evil cobbles are, but Derby has cracked the whole issue. Keeping the historic nature of the cobbled areas while making them usable for all people. If you are disabled, a trip to Derby is a must if only to witness how accessible it is.

When you are a wheelchair user like me, how accessible a place is can really effect how you experience what is on offer when you visit. I have lost count of the number of holidays and trips out have been ruined by crap access. With Derby being so accessible it became clear that our one night was not going to be enough. We arrived early, as I am a sticker for time keeping, and after we unpacked in our room, we went out for a walk around. I love shopping, and in Derby I could feed my addiction very nicely. We did pop into the Westfield shopping centre briefly, but much preferred the myriad of shops outside. Something that is noticeable about Derby is how many of the shops inside the centre are repeated outside. Thus saving shopping centre phobics, like my poor wife, from the horror of being stuck in the unnatural environment of Westfield and the like. On top of the usual high street fair, Derby has loads of little boutiques selling high quality items. From local designers to designer labels there’s something for everyone. I found some great jewellery shops too. Hmm, that’s good shopping.

While I love to shop, Diane loves to stop for a coffee and watch the world go by. Derby has many lovely coffee shops and restaurants, catering for all tastes. Top quality gourmet food, local produce and high street chains are all there. We tried out a couple of little coffee places, a cheese and bread place just next to the hotel and Pizza Express. All yummy with great food and really great staff.

Even if you don’t fancy shopping and eating (are you still alive?), you can easily enjoy just wandering around the city. Being an architecture buff, I found the many architectural styles of Derby fascinating. It has spans the most of industrial history, from Georgian and Victorian grandeur through 30’s and 60’s modernism to recent new developments. Definitely visit Waterstones. It’s a glorious old building with loads of original features, with an amazing 30’s building opposite, currently housing spa. In most of the centre of the city I got to combine my love of shopping with sight seeing lovely buildings, especially in the side streets off St Peter’s Street. Check out Pictures of Derby to see what a treasure chest of buildings the city is. I’d also advise a walk down by the river. Romantic and beautiful.

If you haven’t been, I would advise you give Derby a try. I fell in love with the city after one day and know I want to go back, soon. I know it has a thriving arts scene for one thing, and I want to taste some of the creative offerings Derby has to offer, as well as it’s other delights.

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