This week my wife Diane and I spent a day in Cambridge. We went there to have a look round as it is one of the places Diane would like to study for her doctorate in Physics. It is a lovely city and we had a great time wondering round it’s historic streets and strolling through it’s colleges. One of the high points for me was the Fitzwilliam Museum. It’s funny, that while it is a smaller museum than many of the ones we visit here in London, the quality of it’s exhibits are superb. The Egyptian rooms were especially great, filled with wonderful artefacts that gave a real insight into what life was like back then.
While we were walking around the pottery and ceramics rooms we met a friendly and charming guide called Sam. We started talking and he gave us a real insight into what studying at Cambridge would be like. He had studied there for his degree into Philosophy, and he was about to go to Durham to do his masters. Funnily Diane had just come back from studying up there and so the conversation deepened. At some point Sam asked me what I did, more out of courtesy I think as I had obviously less to say in this conversation of academics – being the “blonde” in my relationship – and so I gave him a potted history of Mik. Of course he had never seen me on TV, but then I guess that at no point in his studies did he feel the need to combine Philosophy with kids TV or disability magazine shows. However when I started talking about my writing we found that his Philosophy studies and the subjects I wrote about crossed over.
Eventually we got to the big Philosophical subject of the minute for disabled people, assisted suicide, euthanasia and mercy killing. We chatted about what society seemed to think, what I felt and what Sam’s studies and beliefs had led him to believe about the issue. He was very anti-abortion, and while both Diane and myself are pro-choice, we soon reached an agreement that the problem with this issue of terminating life was lack of information. Sam thought that abortion was like destroying beautiful objects, like the ones we were surrounded with. While the status of a foetus could be open to debate, it was still something to be cherished, and so should not be destroyed. We felt that while this was correct, the person carrying the foetus should have the choice. I brought up the problem of aborting disabled foetuses, and how I believed that this was wrong, and realised that I might be arguing for both camps. This made me see that maybe my stand point might be wrong, and that I needed to re-examine where I stood on abortion. I hope that our discussion made Sam revalue his more pro stand on euthanasia too.
The main thing to come out of this exchange was the realisation that disability and it’s ramifications are not part of academic study. While there is the subject of disability studies, and it is included in some other subjects, there isn’t enough literature on the topic to ensure that any discussion around disability can be carried out from a position of knowledge. I know from my own experience that some subjects are still teaching theories about disability that are years out of date.
Up until earlier this year I was taking a Psychology degree, but when we got to the area of the psychology of identity I found I had a problem. The way identity was explored was using the identity of disability. Ha, I thought, this will be an easy module. As I began studying however, I found that the only model of disability being used was the medical one. Time and time again, disabled people were described and described themselves via their medical conditions. While I understood how a subject like Psychology would have an interest in the medical aspects of disability, I could not see why the social model and how society makes our physical differences disable us was totally excluded. Surely when exploring the psychology of identity the two models were of massive importance, especially as they have changed how disabled people see themselves, which is pretty much what identity is. When I raised this issue with my tutor, well lets just say I am no longer of uni.
But of course, if there are a small number of publications that explore disability at an academic level, how can academia start to understand how disability colours so many areas of study? Not just the obvious but everything. So many historic figures had disabilities, yet we hear little about that. Julius Caesar was an epileptic, and his desire to hide this from the Roman people led him to form close bonds with all who worked for him. Hence why he treated them so well, and why they felt such a bond with him. This was one of the reasons why he rose to be the leader of the Roman Empire – and he is just one figure of many. (Any TV producers out there, I have a TV show I have researched on this subject that would be a fantastic show). How has disability influenced the world and how we are?
With this question in mind I am planning to research and write a book exploring disability and it’s many facets. I want to cover the many issues surrounding disability and gather views and experiences of disabled people through out the country and of all ages. I want to create a reference point that can be used by everyone to explore how disability effects the world we live in, and how it effects us. So if there is anyone out there who would be prepared to be interviewed by me could you please contact me via my website? The book is in the planning stages but if you feel you would like to contribute, please just drop me a line and we can take it from there.